Hello and welcome to 'my butterfly family'
This charity has been set up by Kirsty Bylett after loosing her cousin (Jason
Wakerell) on the 2nd January 2013 due to not receiving the much needed heart
transplant he desperately needed. Prior to this, in July 2010 Kirsty's auntie
slipped away due to cardiac problems too, which were inherited to her cousin.
With the passing of her cousin, Kirsty had to listen to stories of how her
cousins children were struggling to accept their fathers passing.
At the end of 2012, Kirsty and her cousin began a small campaign to raise
awareness and get as many people as possible to sign up to the organ donor
register. Upon Jason's passing, Kirsty has pledged to continue this campaign and
has done well in doing so. To date, Kirsty has composed videos, presented talks
to local secondary schools, created a blog, facebook and twitter accounts, and
fundraising events including a family fun day and bravely, committed to a sky
dive.
(For more information please visit her blog:
http://givetoreceive2013.blogspot.co.uk/ )
However now Kirsty is aiming for bigger things, through research it became
apparent that there is a lack in sources for children who have lost their
parents because of transplantation, and similarly for parents who have lost a
child. Through experience regarding her cousin, the whole process leading up to
a potential transplant is devastating enough. For children of the patients,
particularly in Kirsty's cousins case, they have to accept that they may rarely
see their parent due to transplant units being far from home. As well as this,
they need to accept and be aware of what is happening to their parent, however
seeing them deteriorating in front of their very own eyes can be a mammoth task
to accept. Because of these reasons alone, children need support. Should their
parent unfortunately pass away due to not receiving their much needed organ,
children need to feel that they will be ok, that the pain will ease, and when
they feel they are coping it is not because they have forgotten their parent, it
is because they have learnt to live without. The process of bereavement varies
in each individual, however with a day revolving around the children this may
assist with this process, to feel happy for a day and experience positive
emotions after such a negative time. 'My Butterfly Family' aims to provide a
special day for children affected by the loss of a parent which revolves purely
around them, and to also provide a memorial gift to be displayed for them to
look at everyday, again assisting with the bereavement process.
Similar gifts will also be presented to parents who have unfortunately lost a
child to incidents revolving around organ donation.
This charity has been set up by Kirsty Bylett after loosing her cousin (Jason
Wakerell) on the 2nd January 2013 due to not receiving the much needed heart
transplant he desperately needed. Prior to this, in July 2010 Kirsty's auntie
slipped away due to cardiac problems too, which were inherited to her cousin.
With the passing of her cousin, Kirsty had to listen to stories of how her
cousins children were struggling to accept their fathers passing.
At the end of 2012, Kirsty and her cousin began a small campaign to raise
awareness and get as many people as possible to sign up to the organ donor
register. Upon Jason's passing, Kirsty has pledged to continue this campaign and
has done well in doing so. To date, Kirsty has composed videos, presented talks
to local secondary schools, created a blog, facebook and twitter accounts, and
fundraising events including a family fun day and bravely, committed to a sky
dive.
(For more information please visit her blog:
http://givetoreceive2013.blogspot.co.uk/ )
However now Kirsty is aiming for bigger things, through research it became
apparent that there is a lack in sources for children who have lost their
parents because of transplantation, and similarly for parents who have lost a
child. Through experience regarding her cousin, the whole process leading up to
a potential transplant is devastating enough. For children of the patients,
particularly in Kirsty's cousins case, they have to accept that they may rarely
see their parent due to transplant units being far from home. As well as this,
they need to accept and be aware of what is happening to their parent, however
seeing them deteriorating in front of their very own eyes can be a mammoth task
to accept. Because of these reasons alone, children need support. Should their
parent unfortunately pass away due to not receiving their much needed organ,
children need to feel that they will be ok, that the pain will ease, and when
they feel they are coping it is not because they have forgotten their parent, it
is because they have learnt to live without. The process of bereavement varies
in each individual, however with a day revolving around the children this may
assist with this process, to feel happy for a day and experience positive
emotions after such a negative time. 'My Butterfly Family' aims to provide a
special day for children affected by the loss of a parent which revolves purely
around them, and to also provide a memorial gift to be displayed for them to
look at everyday, again assisting with the bereavement process.
Similar gifts will also be presented to parents who have unfortunately lost a
child to incidents revolving around organ donation.